Is it Epilepsy?

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EpiNet Accreditation Study - Is it Epilepsy?

We need to confirm that all physicians who contribute patients to trials within the EpiNet project diagnose epilepsy in a similar way. We have prepared a series of 18 case histories of people who have had turns or blackouts of various sorts. All of these case histories relate to real patients, though all identifying details have been removed or changed. Many of these patients have epilepsy, but some do not. In some situations, it may not be clear, on the basis of the information provided, whether or not the person has epilepsy or another disorder. Our view is that these patients should not be included in a study of new onset epilepsy.

We encourage all epileptologists, neurologists, and paediatricians who treat people with epilepsy to assess these cases. Doctors (physicians) who would like to participate in the EpiNet-First trials will need to participate in the accreditation process if they did not complete the earlier set of 30 cases.

Everybody is asked to assess the same 12 cases; some participants will be invited to assess a further 6 cases.

Once you have registered via the link above (or below), enter your log-in details here to access the cases:

We anticipate that it will take 30 - 45 minutes to complete the 12 cases    

To Register - click here!


EpiNet Validation Study - Is it Epilepsy?

We prepared a series of 30 case histories of people who have had turns or blackouts of various sorts, and we asked neurologists and epileptologists to tell us whether they thought these patients had epilepsy or other sorts of attacks. 

This study has now completed and the results are being analysed; however, we invite adult and child neurologists, epileptologists and paediatricians who uses anti-epileptic drugs to treat patients with epilepsy,  to participate in the briefer accreditation study. 

All doctors, except those who lived in New Zealand, who completed the assessment of the 30 cases before the end of March 2014 went into a draw to win a holiday in New Zealand. All those who completed this study before the end of 2013 got a bonus (ie second) entry into the prize draw. A further entry into the prize draw was given to EpiNet investigators who completed the study.

The main component of this fabulous prize was an 8-day self drive tour of the South Island of New Zealand, courtesy of Fine Tours New Zealand  (see this link

A taste of the South Island tour-PDF re tour

Airfares for two to allow travel to New Zealand were provided by the Julius Brendel trust.

Prize Draw

The prize draw being made by Dr Richard Frith, Chairman of the Julius Brendel trust. (Dr Frith is on the right of the photo, as you look at it, and Dr Peter Bergin, Chairman of the EpiNet study group is on the left.)

The draw was made on 28th April 2014. The prize was won by Dr Benjamin Legros from Hôpital Erasme from Brussels, Belgium. Dr Legros has been an investigator with the EpiNet Study group since 2010. He had registered over 500 patients in the EpiNet database by the time the draw was made.

Even though the prize has been won, people are still welcome to participate in the accreditation study to determine how much variability there is in diagnosising epilepsy around the world.

To Register - click here!